Source: The Independent

Walking To Honor Her Dad

by Kitty Merrill

September 04, 2013

Tammie Lenz’s father, John, lost his six-year battle with ALS last year. Now, the Sag Harbor resident is channeling her grief and heartbreak into walking – to fight the disease and raise money in her Dad’s honor. John Lenz was a Montauk resident, and Tammie grew up there.

Team Lenz – comprised of family and friends – is raising money and participating in The ALS Association’s Walk to Defeat ALS on September 22 in Eisenhower Park upisland.

Also known as Lou Gehrig’s Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages two to five years from the time of diagnosis, Lenz reports on her walk webpage.

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease, Lenz’s page informs. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

There’s no known cause of ALS, which can strike anyone. It often strikes military veterans. Care for a person stricken with Lou Gehrig’s Disease can average $200,000 per year.

The ALS Association raises money to help sustain care services and support research. It’s the only national nonprofit organization fighting Lou Gehrig’s Disease on multiple fronts – leading the fight to treat and cure ALS by funding global research and nationwide advocacy while also helping patients and their families with compassionate care and support.

Overall, the ALS Association, Greater New York Chapter, is looking to raise $700,000, with almost $170,000 pledged so far. Team Lenz has set a goal of raising $2500. As of Monday morning, after about a month of soliciting donations, the team listed $2115 in pledges. Asked to weigh in on the support she’s received, Lenz said, “It’s been great . . . People have been really good.”

To donate to Team Lenz, visit Tammie Lenz’s Facebook page or The Independent website, where you can click a button to call up donation info.